23 signs you grew up with ehlers danlos syndrome

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.

Urgent Care. This connective tissue disorder affects individuals in various ways, impacting their joints, skin, and overall quality of life. If you suspect that you may have grown up with EDS, it's important to understand the signs and seek appropriate support. EDS is a group of genetic disorders that affect the body's connective tissues, which provide support and structure to various organs and systems. This condition is characterized by faulty collagen production, leading to symptoms such as hypermobility, joint instability, and fragile skin.

23 signs you grew up with ehlers danlos syndrome

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people. There is no cure for Ehler-Danlos syndrome. A few ways to manage Ehler-Danlos syndrome are:. People with Ehler-Danlos syndrome have fragile blood vessels. So, doctors may want to lower their blood pressure with medications.

Urgent Care.

Ehlers-Danlos syndrome EDS is a group of genetic disorders that affect the connective tissues. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. However, there are several causes of hypermobility, and many children with hypermobile joints do not have EDS. Many children with EDS also have soft, fragile skin and bruise easily.

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body.

23 signs you grew up with ehlers danlos syndrome

For the Ehlers-Danlos syndrome EDS guide, we interviewed three medical experts, read numerous studies and surveyed more than people living with EDS. The guides are living documents and will be updated with new information as it becomes available. Ehlers-Danlos symdrome EDS affects your collagen, a connective tissue found everywhere in your body. While most types of EDS include joint hypermobility and dislocations, loose or stretchy skin, and easy bruising, your exact symptoms will depend on which of the 13 EDS subtypes you have. Other common EDS symptoms include eye trouble, digestive health issues and bone growth differences. Medically reviewed by David S.

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A few ways to manage Ehler-Danlos syndrome are:. Pauker SP, et al. There are many different types of Ehlers-Danlos syndrome, but the most common signs and symptoms include:. Easy Scarring : Wounds may heal slowly and leave noticeable scars. Surgery should therefore only be considered if more conservative forms of therapy have not succeeded. Clinical manifestations and diagnosis of Ehlers-Danlos syndromes. Information: Self-refer for treatment If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP. Symptoms of EDS can range from mild to life threatening, and depend on the type your child has. The diagnosis is made based on a person's medical history and a physical examination. Customer Reviews. Most people with Ehler-Danlos are unaware of their condition as they are unable to spot signs like easy skin bruising and joint dislocation. If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP. Accessed Aug. Kliegman RM, et al.

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Health Information Policy. If there's a possibility you may have 1 of the rare types of EDS, the GP can refer you to your local genetics service for an assessment. Community Health Needs Assessment. The Department of Ophthalmology offers the latest and best in diagnostics and care for children with vision problems. Our team of specialists is experienced in managing EDS-related symptoms and providing support throughout your healthcare journey. An educator's guide: Meeting the needs of the Ehlers-Danlos child. The GP may refer you to a joint specialist rheumatologist if you have problems with your joints and they suspect EDS. May 29, People with vEDS may have: skin that bruises very easily thin skin with visible small blood vessels, particularly on the upper chest and legs fragile blood vessels that can bulge or tear, resulting in serious internal bleeding a risk of organ problems, such as the bowel tearing, the womb tearing in late pregnancy and partial collapse of the lung hypermobile fingers and toes, unusual facial features such as a thin nose and lips, large eyes and small earlobes , varicose veins and delayed wound healing Kyphoscoliotic EDS Kyphoscoliotic EDS kEDS is rare. In-depth results. Learn more about Lower Extremity Program.